Tuesday, June 23, 2009

LFA - On the Road to a Cure

You need to check out this wonderful blog. I will also link this blog on my website www.SimplyStrungtogether.com as well. http://lfa-inc.blogspot.com/ This blog is full a information that is fantastic!

Isn't it wonderful that a disease like Lupus (or any other disease for that matter) can bring strangers together that we might now have otherwise met. I guess you could call that looking on the bright side of things!

At any rate, one of the topics that is listed on this blog hits to the heart of the issue...research. The topic is Lupus Foundation of America Urges Department of Defense (DoD) to Expand Medical Research on Lupus. This is one of the things I am trying to raise money for. I don't know about you...but I need a cure.
Til next blog...take care Lupus Buddies

Sunday, June 21, 2009

Dealing with Lupus Today

Today I woke up extremely sore and stiff. I usually have to stretch and try to work it out. Knees and ankles were not swollen today; however joints are very, very sore. Had my coffee and slowly got my body to get used to moving. Some days are easier to accomplish this than others. My mind has a to do list put together but my body is telling me otherwise. I tried to do housework today...resting about every hour...how sad is that? You know what? I am thankful that I can do that. Today is Father's Day. I am having my step son and his family over for dinner. It will be good to see my grandchildren today as it has been awhile. Take care my Lupus buddies until the next post.

Tuesday, June 2, 2009

Another Great Site

I just got back from DC where I left my daughter for an internship for the summer. She is my only child...wow...how do mothers do it? Very very difficult. She graduates next Spring and she will most likely do an associates program there and go for her doctorate. I am only 4 hours away so that is definitely a plus.

While in DC I did a lot of walking and for those of you who have Lupus know how difficult that is. My legs are slightly swollen but not as bad as I thought. My joints are sore but what else is new? In the past, if I dare stay on my feet too long, I am guaranteed cantaloupes for knees! I am feeling very exhausted, part Lupus, part emotions. I am resting the rest of the afternoon for fear of heading into a flare. You have to pick and choose your battles with this disease. All said and done, I did pretty good!

I would like to share a new contact in which I will be partnering through my www.SimplyStrungTogether.com site. Please visit www.butterflylupus.com let me know what you think at ekada3004@msn.com. I think it is worth joining! Take care until the next post.